Now to get permission from my nurses in Albany…
I might just do it anyway, if I don’t have a consistent one.
(This is promising for Binghamton, as well!!)
I’m not allowed to travel with my PICC, and this meant no Ashokan, no UULTI, no Stearns/Fox camping, and now I’m realizing that there are a LOT of other things associated with this…
I’m not allowed to: travel, lift anything heavier than 10 lbs, sweat too much, get the dressing wet (hence no sweating), or get too hot (sweat, and actual heat), be anywhere too humid (like by a lake). So I have spent A RIDICULOUS AMOUNT OF TIME INSIDE IN THIS WEATHER BECAUSE I’M NOT ALLOWED TO BE HOT OR GET SWEATY OR HUMID OR ANYTHING AFDHJILA;SJFDIAS;GAH :(
1) No Renn Faire (too hot)
2) No Flurry? If I can’t dance, can’t lift anything heavier than 10lbs I can’t volunteer so there’s no point in me going, paying that much, and not being able to dance
3) No studying abroad (though this is just in general with lyme, not picc specific)
4) I’m not allowed to travel and have to tell my nurse wherever I’m going and when just in case something happens, and I have to have my dressing changed every 7 days (or less).
I’m pretty sure that this will fuck up a few things:
a) going and seeing Ben during the fall semester
b) going home for a weekend when I feel like it/am homesick
c) going home for breaks other than summer break
d) visiting any of my friends
e) going to slams, contra, concerts…?
5) No working catering. It’s hot, sweaty, and involves lifting/pushing stuff (which I’m not allowed to do). My nurse is already pretty happy that I haven’t been working at the bakery these past few weeks (they haven’t been busy enough to need me) because it’s been making my PICC less bleed-y but money??? :( I work so I have some freedom and can buy myself things and other people things and so I can put stuff in savings that I am NOT going to dip into because they are for more important things but fjias;fjdias; :(
in short, i’m afraid that this is going to affect me a whole fuck lot more than I originally realized.
I’ve been trying to stay sane and maintain some semblance of independence while dealing with this, and not being reliant on everything from my parents and being able to just stay out all night if I wanted to (haven’t yet but whatever) and just…sadness about all this, finally hitting me again
Irregardless of whatever people say, I feel like a failure when I can’t do something due to Lyme or treatment for Lyme. I’m sorry.
MRS A CALLED ME
tired sick can’t sleep have papers to write at home for Dad’s birthday and now it’s over and I miss you guys back at school but damn it I just want to stay here where I feel safe and taken care of and loved and where the only responsibility I have is feeding the cats and making tea I just don’t want to feel sick anymore but dr’s appt tomorrow i have no idea what’s going to happen
I just want to sleep